Monday, November 2, 2009

Op-Ed: Include all the options in the euthanasia debate


Editor’s Note: Today, I posted a link to the National Post article by MP Steven Fletcher's thoughtful piece on Bill C-384 on legalized euthanasia and assisted suicide in Canada http://bit.ly/3fu6th This is Knowledge Mobilization Works Senior Fellow, Daryl Rock’s response.

I do have my own thoughts on euthanasia…based on my education, understanding of human nature and my own personal experience. Like Steven, before my injury I was young, athletic, had the world by the tail. And then I broke my neck! And like Steven, had 2 collapsed lungs, a broken neck, and could not move a muscle for a long time after my injury… and that is where our similarity of experience and also thoughts on this issue diverge (although interestingly, not completely) and so I want to be very clear that I value Steven’s points and more important, commend him for expressing them in such a public forum.

For me, the problem with the current debate on euthanasia, in the USA and Canada is it is always framed in dealing with a very small portion of the population: terminal illness, ongoing pain or severe disability... and it paints people in these circumstances as having such poor quality of life that the "were I in their shoes" mentality that exists in these situations would lead many folk to say, “I'd want to kill myself, so surely these folk want to as well”. In short their perceptions of the quality of life of someone in these circumstances leads them an those around them, to think, and act, in a manner they consider “humane” when in fact it is more likely their fear or lack of understanding of the unknown that motivates them.

But what happens when we change the focus of debate? Let’s move away from “euthanasia for a select portion of our society…the poor hopeless ones” and frame the debate more broadly and in so doing, more objectively – about the merit and value of euthanasia, as an option for anyone! Many people who attempt to commit suicide do it poorly because of fear, nervousness, lack of skill, whatever, shouldn’t these people be allowed access to professional quality life ending techniques? In short, don't make it about disability or illness, that just paints disabled and ill people in the traditional "poor them" light. Rather, if you are going to have a debate about euthanasia - have a real one...like abortion why not open euthanasia clinics around the country so that anyone, disabled, ill, bored, angry, unemployed, broke, etc...has the choice of whether or not to kill themselves with help. Keep the same criteria as is in the current proposed legislation: sound mind, 2 interviews, whatever, (but exclude the requirement to be terminally ill or severely disabled) … then, if “joe blow” wants to pop off, let him! I think we all know how short this debate would be!

Focusing the debate of euthanasia only on the terminally ill, severely disabled and those with chronic pain passes a quality of life judgement and in fact cheapens the life of a person living with these conditions. More important, it skews the debate into a more “politically correct” area…after all we are talking about those who can’t help themselves. As I said above, I suspect that if the debate was simply about the general idea of euthanasia for anyone, there would be a huge backlash and the debate would be quickly snuffed out because as a society of evolved human beings, we value life, or at least the life of healthy, well adjusted individuals…

Even worse, by focusing it on the ill, disabled or those in chronic pain, we are simply reinforcing the negative stereotypes of people living with these conditions and continues to create a dual class society where disabled and ill are seen as at best pity objects and at worst, burdens to be done away with...

In my view Steven missed an opportunity to put the issue in its proper light. From what I read the current debate really isn’t about right to live or die with dignity, it is about peoples perceptions of the value of those living with conditions they cannot imagine how to cope with... as I will explain below (and where I do agree with Steven), if a person, any person be they physically disabled or emotionally disabled, is given hope and a reason to live, only those with fundamental mental health conditions will chose the death option…

I do not believe the current debate is doing justice to either the issue of euthanasia or to the value of dignity for all…specifically the value we place on human contribution to society or, and here I again agree with Steven, the debate about effective supports to ensure hope and something to live for options are available to everyone...

So, if we have to focus on discussing euthanasia for only this small segment of society (which I find distasteful and therefore hesitate to do), what are my thoughts? Not surprisingly I believe the debate has to fully include the second element of Steven’s article, that is to say the provision of hope and more important – a reason for living. I believe that, when a person has no hope they will often consider death (as he might have when he first injured himself). But when a person, no matter how ill, or in pain, or disabled has hope (and respect, and the ability to live in some sort of dignified way, and a purpose) then the issue of choosing to die becomes less of a one sided option. Further, research shows that if you constantly bombard someone with an image of themselves, either positive or negative, it only takes a very short while (a couple hours in the case of the research on young students – the blue eye vs. brown eye “smart kids” experiment of the 1950s) before they begin to take that opinion as fact… thus the doom and gloom of those around a person will often and quickly lead to their feeling doom and gloom.

We also know that life experiences, culture and background will play a significant role in how each of us reacts to this type of situation. In many cases not only will someone severely disabled, or terminally ill, or in chronic pain want to kill themselves, but there are likely many "professionals" and "loved ones" around them who would support this decision because if they were in the similar situation, they’d want to too! Although I do not know for sure, I believe it highly likely that, had there been supported suicide when Steven was immediately injured and when he had no hope, then we'd have one less MP. And yet today, with hope, and the proper supports, Steven is a hugely contributing member of our society.

I have many friends without disabilities who do not or can not or will not see the distinction between euthanasia for all and euthanasia for the disabled and dying as an artificial one. This inability to see the difference reflects to me, an inability to fully appreciate the potential quality of life someone living with one of these conditions can have, and as important, their potential contribution to their family and to society…

At the end of the day, where do I stand (metaphorically)? I believe people should fundamentally have the right to choose, thus I fully support euthanasia, provided people are given valid choices and only IF we decide through public discourse, that euthanasia is an acceptable service that should be available to all of society. In that way people living with these conditions are not marginalized and can access the service just as readily and as anyone else…that, to me, is treating all people fairly, providing full access and equal opportunity to all citizens.

In closing I have to say this is not an easy issue to deal with and there are probably many more opinions than there are options. And to be clear I am glad I do not have to make the very tough decision now in front of the House… whatever the outcome, continued, thoughtful, honest debate, eschewed of the cloak of political correctness, is a healthy way to continue this dialogue.

Daryl Rock

To cite:

MLA format
Rock, Daryl, "Op-Ed: Include all the options in the euthanasia debate." Weblog Entry. Knowledge Mobilization Works Blog. Posted November 2, 2009. Accessed (enter date). http://bit.ly/4GceHA

APA format
Rock, D. Op-Ed: Include all the options in the euthanasia debate. Retrieved (enter date) from http://www.knowledgemobilization.net [http://bit.ly/4GceHA]

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